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A WOMAN who was once suicidal due to having a rare disorder that causes scaly skin, now is living life to the full. Mui Thomas, who resides in Hong Kong, suffers from a rare skin disorder called harlequin ichthyosis. Harlequin ichthyosis causes scaly skin, which cracks creating open wounds that leave suffers vulnerable to infection. The oldest survivor of harlequin ichthyosis is 35 years of age. At 26 now, Mui is one of the oldest known survivors and the world's first rugby referee living with this condition. Follow Mui's story here: https://www.facebook.com/GirlBehindTheFace/
Videographer / director: Edwin Lee
Producer: Rafaela Kuznec, Ruby Coote
Editor: Marcus Cooper
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She is a living doll! What a sweetheart....May God Bless you with a long lasting life without any suffering. Bravo Kiddo 🙌🏼 keep doing what you are doing and ignore the haters(losers in life!!🤮) 😂😇🙏🏼❤️👍🏼🍀💋
Such a sweetheart, I really have trouble believing how cruel this world can be. It is sad to know there are people that can bully someone whose clearly struggling and just push her down to feel less than everyone. She has such a beautiful and bright personality and I admire her for being such an inspiration
Doesn't surprise me that there's people in this world, so cold and uncompassionate it's disgusting. These unfortunate people don't have a choice in the matter and thus are forced to play the hand they're delt and it takes so much courage and strength to not only live the best life they can but also be willing to be open and share their conditions and spread awareness and education to those who don't understand.
The bullies should live with a condition like this for one day and see and feel what it's like and maybe they'll aquire a shred of human decency and compassion
People are so mean! Like wow...I watch these videos to be proud of these people that are different! I KNOW people need to be nicer and take in people that are different and unique there different in there own way and you should be Proud!
Why does she have her profiles like Instagram on public, when she could leave it on private do that only your friends can comment and like, she can decide who sees her photos and she will know who is bullying her because she would only accept people to follow her that she knows
And mui ur beautiful dont let ppl control u if they say ur ugly its not true there just jelous if the say anything bad say u might think im ugly but it my opinion that im pretty or u can say wat u want its ur life enjoy it😛😃😄😀😊
You know, she has a great personality and it doesn’t matter how she looks she’s amazing she’s lived longer than anybody with that disorder, and she doesn’t care about the hate anymore and that really is amazing! And I hope she can live a full life :))) because she’s beautiful just the way she is ❤️❤️💛💛💚💚💜💜💙💙🧡🧡🖤🖤 :))
OMG she is soooo pretty those bully’s should get their eyes checked she is way more prettier and beautiful than me I’m ugly but she is beautiful amazing and an inspiration to every person who gets bullied she is the best and she brings happiness xxxx
You are very beautiful Mui and I just can't understand why you would get bullied you are just like all of us there is no difference we are all humans and I'm just glad you moved on from all the bullying because everyone deserves a chance and a second chance
Literally the person who said that is not even human legit so entitled to having everything their way and hating on people who can't change how they look. Anyone who would say that is a monster from hell.
I have lamellar Ichthyosis and I can relate to her. she is inspiring and I love her personality. being brave is hard to do especially being in public and the fact she can take this tough situation and turn it into something positive is amazing. Mui you are amazing and beautiful!!!!! ♥
And people are shocked when they hear about a suicide....it's so undescribably sad how horrible people treat each other...and it's not just the physically different,it's the masses of blatant cruelty and ignorance.... For OUR sake, JUST STOP,yes you,be kind 💕
Liver biopsy interpretation scheuer.
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